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Patient Registry

Showing 1 - 25 of >10,000
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Massive Transfusion in Trauma Patient Registry

Recruiting
  • Trauma
  • blood products as a part of Massive Transfusion Protocol
  • Dallas, Texas
    Methodist Dallas Medical Center
Nov 13, 2023

Vitaccess Real MG Registry

Not yet recruiting
  • Myasthenia Gravis
    • Oxford, Oxfordshire, United Kingdom
      Vitaccess Ltd
    Sep 26, 2023

    Otoferlin-related Auditory Synaptopathy, Hearing Impairment Trial in Goettigen (Molecular genetic testing and audiometry)

    Recruiting
    • Otoferlin-related Auditory Synaptopathy
    • Hearing Impairment
    • Molecular genetic testing and audiometry
    • Goettigen, Lower Saxony, Germany
      University Medical Center Goettingen
    Jul 6, 2023

    Global Patient Registry of Inherited Retinal Diseases

    Recruiting
    • Inherited Retinal Diseases
    • Standard of Care
    • Birmingham, Alabama
    • +1 more
    Jul 21, 2023

    Paroxysmal Nocturnal Hemoglobinuria Trial run by the Aplastic Anemia and MDS International Foundation

    Recruiting
    • Paroxysmal Nocturnal Hemoglobinuria
      • Bethesda, Maryland
        Aplastic Anemia and MDS International Foundation
      Feb 23, 2023

      Patients Undergoing Contrast-Enhanced Harmonic Endoscopic

      Completed
      • Hematopoietic and Lymphoid System Neoplasm
      • Malignant Solid Neoplasm
      • Electronic Health Record Review
      • Jacksonville, Florida
        Mayo Clinic in Florida
      Jan 30, 2023

      UK Spinal Muscular Atrophy Patient Registry

      Recruiting
      • Spinal Muscular Atrophy
      • SMA
      • Patient Registry
      • Newcastle upon Tyne, United Kingdom
        John Walton Muscular Dystrophy Research Centre
      Oct 12, 2022

      DRPLA Trial in New York

      Recruiting
      • DRPLA
        • New York, New York
          CureDRPLA
        Aug 3, 2022

        Non-Alcoholic Fatty Liver Disease Trial in Toronto

        Recruiting
        • Non-Alcoholic Fatty Liver Disease
          • Toronto, Ontario, Canada
            Toronto General Hospital
          Nov 1, 2022

          Interstitial Lung Disease Trial in Boston

          Recruiting
          • Interstitial Lung Disease
            • Boston, Massachusetts
              Pulmonary Care and Research Collaborative, Ltd.
            Jul 15, 2022

            Neurogenetic Disorders Trial in Pittsburgh

            Recruiting
            • Neurogenetic Disorders
              • Pittsburgh, Pennsylvania
                Children's Hospital of Pittsburgh of UPMC
              Jul 5, 2022

              VWD - Von Willebrand's Disease Trial in Wellington

              Recruiting
              • VWD - Von Willebrand's Disease
                • Wellington, Florida
                  VWD Connect Foundation
                Jun 24, 2022

                Tendon Injuries- Subscapularis Trial in New Windsor (Tapestry Biointegrative Implant)

                Recruiting
                • Tendon Injuries- Subscapularis
                • Tapestry Biointegrative Implant
                • New Windsor, New York
                  Crystal Run Healthcare- New Windsor
                Feb 16, 2023

                Degenerative Disc Disease Trial in Paducah (TIDAL Cervical Interbody Fusion implant)

                Recruiting
                • Degenerative Disc Disease
                • TIDAL Cervical Interbody Fusion implant
                • Paducah, Kentucky
                  Orthopaedic Institute of Western Kentucky
                Jun 1, 2022

                Wilson's Disease Trial in Paris

                Recruiting
                • Wilson's Disease
                  • Leuven, Belgium
                  • +13 more
                  Jan 9, 2023

                  Polycystic Kidney Diseases Trial in Kansas City

                  Recruiting
                  • Polycystic Kidney Diseases
                    • Kansas City, Missouri
                      PKD Foundation
                    Apr 18, 2022

                    Natural History Study of Patients With HPDL Mutations

                    Recruiting
                    • Mitochondrial Encephalomyopathies
                    • +6 more
                    • Patient Registry
                    • Dry blood spots sampling
                    • San Diego, California
                      Eun Hae Lee
                    Apr 28, 2023

                    Cervical Cancer, Endometrial Cancer, Ovarian Cancer Trial in Seoul (Patient registry)

                    Recruiting
                    • Cervical Cancer
                    • +4 more
                    • Patient registry
                    • Seoul, Korea, Republic of
                      Department of Obstetrics and Gynecology, University of Ulsan Col
                    Jun 12, 2023

                    Sphingolipidoses, Enzyme Deficiency Trial in San Francisco (no intervention)

                    Recruiting
                    • Sphingolipidoses
                    • Enzyme Deficiency
                    • no intervention
                    • San Francisco, California
                      University of California San Francisco
                    Jul 1, 2022

                    Congenital Athymia Patient Registry

                    Recruiting
                    • Complete DiGeorge Anomaly
                    • +2 more
                    • Cultured Thymus Tissue
                    • Durham, North Carolina
                      Duke University School of Medicine
                    Apr 18, 2022

                    Treatment With Proton Beam Radiation Therapy Trial in Cleveland (Proton Beam Therapy)

                    Recruiting
                    • Treatment With Proton Beam Radiation Therapy
                    • Proton Beam Therapy
                    • Cleveland, Ohio
                      University Hospitals Cleveland Medical Center, Case Comprehensiv
                    Feb 25, 2022

                    24-hydroxylase Deficiency Trial in Rochester

                    Recruiting
                    • 24-hydroxylase Deficiency
                      • Rochester, Minnesota
                        Mayo Clinic
                      Feb 28, 2022

                      Cancer Trial (Proton or Photon)

                      Enrolling by invitation
                      • Cancer
                      • Proton or Photon
                      • (no location specified)
                      Mar 31, 2022

                      Predisposition, Genetic Trial in United States

                      Enrolling by invitation
                      • Predisposition, Genetic
                        • Redding, California
                        • +4 more
                        Apr 4, 2022

                        Ischemic Stroke, Acute Trial (Shuxuetong Injection)

                        Not yet recruiting
                        • Ischemic Stroke, Acute
                        • Shuxuetong Injection
                        • (no location specified)
                        Aug 24, 2023